paeds follow up?
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Joshs-Mummy
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~JakesMum~
Jeshiko
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paeds follow up?
It's been almost 10 months since Mikko was diagnosed and we finally have a follow up apt with the paed on Wednesday. what's it for? well what do they do anyway? I have never been told if he is moderate or severe so is this when that happens?
Re: paeds follow up?
We have NEVER had a follow up, we were simply told and handed a bunch of leaflets and left to it. Hope it goes well for you. x
~JakesMum~- Posts : 8
Join date : 2011-09-27
Location : Kent
Re: paeds follow up?
I don't think Ian's ever had a follow up paed appt; all ours have been for George. GSE used their tame Paed to make the diagnosis and even then I had to ask for specifics. He's ASD as compared to George's PPD-NOS
Re: paeds follow up?
We have our follow up in a few weeks, Hopefully this time the dr gets to dx a bit better, he did state at our 1st visit Josh was more than likely to be mid to lower end of the spectrum, But alas Josh dont do being in small rooms,( or going in to any shops no matter what size) last time Josh had a MAJOR meltdown, nothing I did was able to calm him....he finally cried himself to sleep after 20+ mins, so the dr said better to let him sleep rather than wake him to be examined, ......
Joshs-Mummy- Posts : 40
Join date : 2011-09-18
Location : At home.....
Re: paeds follow up?
We have regular 6 months check up with paeds. They ask questions about Ben and see where he is at and how we are feeling about things, if there is any concerns they will get us an appointment with the right service. I find this very helpful.
Loretta- Guest
Re: paeds follow up?
Is your appointment today - if so good luck and let us know how it goes
missbee- Admin
- Posts : 126
Join date : 2011-09-16
Re: paeds follow up?
It was a bit depressing really. He would like Mikko to start learning sign language as his speech isn't really progressing and said that he is not tracking to be high functioning Feel a bit gutted as I think the Dr is probably right but Mikko's EIT is always so super pos. that she had me nearly convinced there. Could be wrong of course!
onwards and upwards!
onwards and upwards!
Re: paeds follow up?
Oh that's not what you wanted to hear. Don't give up though, we were told at one point to prepare ourselves that Ian might never talk and now he does. He's not a non-stop chatterbox like his brother but he can tell you what he wants and most of the time we can understand him.
Re: paeds follow up?
We learnt sign language with our son and now at 8 he is starting to be understood verbally by his teachers Just takes time sometimes.
Loretta- Guest
Re: paeds follow up?
*hugs* I'm sorry it's not the news you wanted to hear. There is something super cute about little kids signing, though! I hope you can work out some way of him being able to communicate, but don't give up hope of speech, these kids are pretty amazing
hismama- Posts : 77
Join date : 2011-09-22
Re: paeds follow up?
the thing is, if Mikko want to say something he generally uses the word. It's just he only communicates when he wants something so his words are "movie", "Juice" "again" etc. I am not sure that sign language will help in anyway or if I would have any luck in teaching him. I can't see it happening to be honest. he does understand the sign for 'finished' though as I use it for TV time
Re: paeds follow up?
Aww Im sorry for your news. *hugs* Wow for Mikko knowing the words for when he wants something. And great he knows one sign language.
Our DD doesnt really have any words that she uses for objects, she just rambles on about things. We're trying really hard to work on her "requesting" We'd love it if she'd say juice for a drink etc, anything to do with eating/drinking. We have to guess if shes hungry/thirsty and basically go by memory of when she last had something. *sigh* sorry if like im whinging a bit. just a bit grumpy from this afternoon
Just found out we have a follow up Paed Appt in November, Dont really know what to expect. Been thinking latley, whats it for exactly? Silently dreading that something else might be brought up aswell. We got diagnosed in August, so im not sure if i should be worried since they want another appt so early.
Also our GP cant find, the paed report of her diagnosis, and we havent heard back from paed office about it either. As i went to complete a form for her, but our Gp couldnt finished it (as he cant legally) as he doesnt have the paed report to confirm her ASD. So that basically just made me grumpy this afternoon. I know i should just be patient. But grrrr is all im feeling at the moment.
Our DD doesnt really have any words that she uses for objects, she just rambles on about things. We're trying really hard to work on her "requesting" We'd love it if she'd say juice for a drink etc, anything to do with eating/drinking. We have to guess if shes hungry/thirsty and basically go by memory of when she last had something. *sigh* sorry if like im whinging a bit. just a bit grumpy from this afternoon
Just found out we have a follow up Paed Appt in November, Dont really know what to expect. Been thinking latley, whats it for exactly? Silently dreading that something else might be brought up aswell. We got diagnosed in August, so im not sure if i should be worried since they want another appt so early.
Also our GP cant find, the paed report of her diagnosis, and we havent heard back from paed office about it either. As i went to complete a form for her, but our Gp couldnt finished it (as he cant legally) as he doesnt have the paed report to confirm her ASD. So that basically just made me grumpy this afternoon. I know i should just be patient. But grrrr is all im feeling at the moment.
renee_chch- Posts : 15
Join date : 2011-09-18
Location : Christchurch
Re: paeds follow up?
renee_chch wrote:Aww Im sorry for your news. *hugs* Wow for Mikko knowing the words for when he wants something. And great he knows one sign language.
Our DD doesnt really have any words that she uses for objects, she just rambles on about things. We're trying really hard to work on her "requesting" We'd love it if she'd say juice for a drink etc, anything to do with eating/drinking. We have to guess if shes hungry/thirsty and basically go by memory of when she last had something. *sigh* sorry if like im whinging a bit. just a bit grumpy from this afternoon
Just found out we have a follow up Paed Appt in November, Dont really know what to expect. Been thinking latley, whats it for exactly? Silently dreading that something else might be brought up aswell. We got diagnosed in August, so im not sure if i should be worried since they want another appt so early.
Also our GP cant find, the paed report of her diagnosis, and we havent heard back from paed office about it either. As i went to complete a form for her, but our Gp couldnt finished it (as he cant legally) as he doesnt have the paed report to confirm her ASD. So that basically just made me grumpy this afternoon. I know i should just be patient. But grrrr is all im feeling at the moment.
ring the paed. they are seriosuly slack. We were supposed to have out follow up apt back in June
But yeah I would call them and chase up the letter. That way you can get your CDA etc. I just applied for a mobility parking permit There's got to be some perks right
Re: paeds follow up?
How come you get a mobility parking permit?
teegee- Posts : 82
Join date : 2011-09-16
Location : Wellington
Re: paeds follow up?
teegee wrote:How come you get a mobility parking permit?
under criteria 3... something like unable to walk 200metre unassisted
Mikko would sit down in the middle of the road sometimes if he wants to be carried. He also often won't hld my hand and just takes off and is pretty unaware of dangers like cars.
It hasn't come through yet so I'll let you know if we get it but the GP was happy to help me apply so fingers crossed!
Re: paeds follow up?
Jeshiko wrote:teegee wrote:How come you get a mobility parking permit?
under criteria 3... something like unable to walk 200metre unassisted
Mikko would sit down in the middle of the road sometimes if he wants to be carried. He also often won't hld my hand and just takes off and is pretty unaware of dangers like cars.
It hasn't come through yet so I'll let you know if we get it but the GP was happy to help me apply so fingers crossed!
etc can't remember if it's 200 or 20 m
Re: paeds follow up?
Lucky you if it does come through - it will be handy since you have 3 kids! I know I struggle taking 3 kids out - mostly because DD1 is a runner
teegee- Posts : 82
Join date : 2011-09-16
Location : Wellington
Re: paeds follow up?
teegee wrote:Lucky you if it does come through - it will be handy since you have 3 kids! I know I struggle taking 3 kids out - mostly because DD1 is a runner
yup! so often I have Kasper on my back and Mikko in my arms. Thats about 29kgs
Re: paeds follow up?
Shardei does the exact same thing, Good luck with the permit.Mikko would sit down in the middle of the road sometimes if he wants to be carried. He also often won't hld my hand and just takes off and is pretty unaware of dangers like cars.
He rang the paed while i was there, but couldnt get the report or the Paed Dr either, so I'll just have to wait til he can. Also Im really curious to read it myself. hehehe.
renee_chch- Posts : 15
Join date : 2011-09-18
Location : Christchurch
Re: paeds follow up?
just catching up on this update.
Hugs to you. Does the EIT teacher see him more - perhaps she can see more positive development already and sees how far he has come and how far he can go
Hugs to you. Does the EIT teacher see him more - perhaps she can see more positive development already and sees how far he has come and how far he can go
missbee- Admin
- Posts : 126
Join date : 2011-09-16
Re: paeds follow up?
missbee wrote:just catching up on this update.
Hugs to you. Does the EIT teacher see him more - perhaps she can see more positive development already and sees how far he has come and how far he can go
yeah she does. She's also seen a lot of kids. But I guess I just can't imagine Mikko anyway other than the way he is now so it's much easier to visualise him not developing iykwim. It's not like he just sits rocking in a corner or anything but he certainly couldn't be mistaken for a neuro-typical 3 year old.
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